“Do not try and bend the spoon, that’s impossible. Instead, only try to realize the truth…there is no spoon. Then you’ll see that it is not the spoon that bends, it is only yourself.”
I think today is the first time I’ve thought to myself that I’ve run out of spoons. I’d almost forgotten about the spoon theory for those that have a chronic illness. Today couldn’t have been more shit, leaving the house at the crack of dawn to make my way to the hospital for a follow up to a blood test. Standard routine test for my calcium and PTH levels, and more than likely, as per the past three. It was going to be slightly elevated but nothing to worry about.
An hour wait after my appointment was scheduled, and mostly myself thinking it was that useless Doctor again who didn’t know his left from his right and probably got lost on the way in, and that’s just at the car park. I ended up with a different doctor, and instantly thought it would be downhill from here.
But I came in with the same attitude that’ll all be the same and I’l just head out and come back in twelve months. Then wham. All my levels were elevated, but why hadn’t I felt any of the symptoms like usual? Came from my vitamin D supplements that I was already taking were keeping them mostly under the radar.
I think I’ve managed my fibromyalgia, and hyperparathyroid okay for the last year. I’ve been active, not been hugely tired or out of spoons due to too much work, too much activity or too much interaction with people. But this time, I was so fucking drained early in the morning that I just didn’t know what to do with myself. I managed to stumble through the day and get some work done, but mostly zone out between jobs and forget about exisiting.
The only positive I can take out of it is that I have a different surgeon this time and a better plan of attack, he was able to explain to me that the constant bone pain comes from an over active parathyroid gland, which then tells my body I need more calcium in my blood stream and takes it out my bones. The only way to slow that parathyroid down is with vitamin D. So even though I’m taking 2,000 UI a day, my vitamin D levels haven’t changed over a year, and that’s with all the outside sunshine from being at the beach during summer as well, or playing/watching cricket. Essentially I’m doing to load myself with high levels of vitamin D and then taper it back to my regular dose and see how the body is in three months time. So yet, another time to put my body through a torture test, and also my mental health of going through all this shit again, much a likeness to recycled toilet paper.
Over time I’d managed to divide my spoons into certain areas, physically, mentally, spiritually etc. So some days I could be out of spoons physically, but still be okay as I had spoons in other areas. But if I didn’t take time to recharge the ones that were depleted, I would start to burn through the others faster. Eventually until I’d be out of them everywhere and struggle to function at all, which is when I’d be pushing into a flare up. Spend a weekend on the couch, not answering texts and just watching tv and napping until I’d be able to do start to build them back up.
But today hearing that news, they all dropped through the floor at the same time. It’s been a long time since that happened, let alone rung out of any spoons. I think given I’d simplified my life I was able to use them more wisely on things that wouldn’t be so taxing.